Developmental Screening Resources

Below are links for parent information on developmenal screening resources and other related topics provided by the National Center on Birth Defects and Developmental Disabilities.

Foundations and
Private Organizations

These are usually groups that support and promote activities related to a specific goal such as improving care for children. Activities can include the funding of research and providing information related to a specific topic such as the developmental needs of children.

Board on Children, Youth, and Families at Institute of Medicine BOCYF
The Board on Children, Youth, and Families addresses policy-relevant issues related to the health and development of children and families by convening experts to weigh in on matters from the point of view of the social, behavioral, and health sciences.

The Center for Child Well-being
The Center focuses on nurturing strengths in children that contribute to their health and well-being, including physical health, growth of the mind, and social and emotional development.  The website includes parenting forums, and resources for parents and community members.

Commonwealth Fund
The Commonwealth Fund is a private foundation that supports independent research on health & social issues. This foundation also makes grants to improve health care practice & policy.

Family Voices
Family Voices is a national, grassroots organization that serves as a clearinghouse for information and education concerning the health care of children with special health needs.  The website includes links to resources and information on advocacy.

First Signs
First Signs is a national non-profit organization dedicated to educating parents and physicians about the early warning signs of autism and other developmental disorders. The site offers information on screening, development, referral, treatment, and resources for parents.

IDEA Infant and Toddler Coordinators Association 
Organizational activities  of this association include promoting the exchange of information in the administration of the IDEA Infant and Toddler Program, providing support to state coordinators, increasing awareness among decision-makers of the needs of children and their families, and providing leadership to help meet the developmental needs of infants & toddlers.

National Association for Child Development NACD
An international organization of parents and professionals dedicated to helping children and adults reach their full potential through the use of innovative techniques and research.  The site offers information on the program, information on joining, and publications and resources.

National Association for the Education of Young Children NAEYC
The nation's largest and most influential organization of early childhood educators and others dedicated to improving the quality of programs for children from birth through third grade.  The site can locate accredited programs by zipcode.

Zero to Three
Zero to Three's mission is to promote the healthy development of our nation's infants and toddlers by supporting and strengthening families, communities, and those who work on their behalf.  The site includes resources for parents and professionals.

Federal Developmental
Screeing Resources

Agencies and organizations listed as “Federal” include those that are associated with the U.S. Department of Health and Human Services, the U.S. Department of Education, or another government agency. These agencies and organizations provide a range of information related to the early identification of children who might benefit from early intervention and education services, statistics about America’s health, assessing development, legislation, and improving outcomes for people with disabilities.

Administration for Children and Families ACF
ACF is a federal agency that funds state, territory, local, and tribal organizations to provide family assistance (welfare), child support, child care, Head Start, child welfare, and other programs relating to children and families.

Agency for Health Care Research (Child Health Toolbox) AHRQ
Measures health care performance in child health programs.

Centers for Medicare & Medicaid Services CMS
CMS is the federal agency that works to assure health care security for recipients of programs such as Medicare and Medicaid.

Child Find (component of IDEA)
Child Find is apart of IDEA and provides information related to the early identification of young children and their families who may benefit from early intervention or education services.

Department of Education DOE
The DOE provides information related to early childhood education and assessing development in children.

Individuals with Disabilities Education Act IDEA
The National Early Childhood Technical Assistance Center website provides the full text  of the IDEA legislation and other related information.

Maternal and Child Health Bureau MCHB
MCHB focuses on maternal and child health and is responsible for Title V of the Social Security Act. Title V is a Federal block grant program that is responsible for ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs.

National Center on Birth Defects and Developmental Disabilities NCBDDD
NCBDDD is apart of the Centers for Disease Control and Prevention (CDC) and promotes the health of babies, children, and adults, to enhance the potential for full, productive living.

National Center for Health Statistics NCHS
NCHS is the principal U.S. health statistics agency and compiles statistical information to guide actions and policies to improve the health of people.

NCHS State and Local Area Integrated Telephone Survey  SLAITS
SLAITS provides in-depth State and local area data that can be used to help meet various program and policy needs.

Department of Education, Office of Special Education and Rehabilitative Services OSERS
OSERS is apart of the U.S. Department of Education and is committed to improving results and outcomes for people with disabilities of all ages.

State Children's Health Insurance Program (CHIP)
SCHIP is a program that was created by the Balanced Budget Act of 1997 and enables States to initiate and expand health insurance coverage for uninsured children.

Professional Organizations

Professional organizations are those that represent a certain profession or area of research. The members of these organizations are usually involved in the given profession or area of research. The organizations listed under the Professional category include those that represent nurses, pediatricians, and child development research.

American Academy of Pediatrics  AAP
The mission of the American Academy of Pediatrics is to attain optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.   The site lists resources including books and articles, and provides articles on current topics.

National Center of Medical Home Initiatives for Children with Special Needs
The American Academy of Pediatrics’ medical home website contains resources, information, and tools on providing medical homes for children and youth with special health care needs (CYSHCN). Visit this site to learn more about CYSHCN, the providers and families that care for them, and the strategies that practices, communities, and states are taking to improve the lives of CYSHCN.

Promoting Developmental Screening

This section provides information on programs that work to promote developmental screening.

Assuring Better Child Health and Development Program ABCD Program
The ABCD program is a part of the Commonwealth Fund and emphasizes new opportunities to expand child development services through Medicaid, the state Children’s Health Insurance Program, and community health centers

Bright Futures BF
A national initiative to promote and improve the health and well-being of infants, children, and adolescents. The site includes publications, training tools, and distance learning materials.

Child Find Demonstration Projects
Descriptions of the Office of Special Education Programs Early Childhood Child Find Projects are listed here.

Healthy Steps for Young Children Program
The Healthy Steps program is a national initiative that focuses on the importance of the first three years of life and is connected to health care practices. The Healthy Steps approach emphasizes a close relationship between mothers, fathers, and health care professionals in addressing the physical, emotional, and intellectual growth and development of children from birth to age three.

Tracking, Referral, and Assessment Center for Excellence TRACE
This project, funded through the Office of Special Education Programs, will establish a center to identify and promote the use of scientifically based models and practices for early identification, child find, and referral for infants and children with disabilities and their families who are eligible for Part C early intervention and Part B early childhood special education programs.

Developmental Screening Research

This section provides information about research efforts on or related to developmental screening.

Annual Early Periodic Screening, Diagnostic, and Treatment Report  EPSDT Report 
The EPSDT service is Medicaid's comprehensive and preventive child health program for individuals under the age of 21. EPSDT includes periodic screening, vision, dental, and hearing services.

National Survey of Early Childhood Health   NSECH
The NSECH provides national baseline data on pediatric care (and its impact) from the parent’s perspective. Survey questions focus on the delivery of pediatric care to families with children under 3 years-of-age and the promotion of young children’s health by families in their homes.

California Children and Families Commission
The California Children and Families Act of 1998 is designed to provide, on a community-by-community basis, all children prenatal to five years-of-age with a comprehensive, integrated system of early childhood development services.  The site offers links to current articles and focuses on current state legislation.

The Whole Child
Resources for parents and educators including articles, videos, and age appropriate activities.

Source: National Center on Birth Defects and Developmental Disabilities

Child Development Resources

For free information on developmental milestones, tools to track your child's developments, and resources about developmental problems and developmental screening, visit

There's more on child development and developmental screening resources at this site.

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